PACES 2024: RGCIRC Introduces Palliative Care Support Group for Cancer Patients to Foster Compassionate Communities

Dr. Gauri Kapoor, Medical Director at RGCIRC, Niti Bagh, and Director of Pediatric Hematology & Oncology

Cancer survivors, patients and experts gathered at the second Annual Palliative & Hospice Care Educational Symposium (PACES 2024) organized by the Rajiv Gandhi Cancer Institute and Research Centre (RGCIRC) at Gulmohar Club, Gulmohar Park, Delhi. The event emphasized the vital role of palliative care in cancer treatment and the need of fostering compassionate communities to enhance the quality of life for patients and their families through meaningful discussions and innovative approaches.

This initiative is a celebration of the upcoming World Hospice and Palliative Care Day on October 12, themed “10 Years Since the Resolution: How Are We Doing?”, highlighting the ongoing global commitment to integrate palliative care into healthcare systems and enhance the quality of life for patients and caregivers alike.

The second edition of PACES witnessed the launch of the “FAQs in Palliative Care” booklet, a comprehensive resource developed from insights gathered over seven years from patients, families, and caregivers.

On this occasion, the institute also announced the formation of support groups designed to enhance community engagement, aligning with the key principles of palliative care to provide comprehensive relief from cancer-related pain and distress while recognizing death as a natural process and prioritizing quality of life.

Dr. Gauri Kapoor, Medical Director at RGCIRC, Niti Bagh, and Director of Pediatric Hematology & Oncology, elaborated on the initiatives saying, “Our mission is to reduce suffering and enhance the quality of life for our patients. Through initiatives like the FAQ booklet and the Palliative Care Support Group, we are committed to building a compassionate community that supports every patient on their journey.”

The support group will address the physical, mental, and emotional needs of patients and caregivers, fostering connections among families and offering essential bereavement support.

Stating about the challenges of forming a palliative care support group in cancer, Dr. Sunny Malik, Consultant In charge, Department of Pain Management, Hospice Care & Palliative Medicine, RGCIRC who is Organizing Secretary of the event, said, “While there are many oncology support groups, establishing a palliative care group is challenging. Patients often pass away, and their loved ones may avoid gatherings due to painful memories. This emotional toll makes it difficult to create a supportive environment, but we believe it is essential."

The Palliative Care Support Group, initially targeting 10 - 15 families, aims to create a supportive community where members can share their experiences, providing comfort and understanding during challenging times.

The purpose of forming the palliative care group is to create compassionate communities by raising awareness about palliative care, connecting patients in need with resources such as wheelchair, beds, medical equipments and nursing support, creating a common platform for assistance, and alleviating suffering throughout the palliative journey.

Broadcast messages, emails, and monthly communications will be sent. It will connect with patients in need, particularly those who don’t yet understand palliative care, as sharing another’s journey can offer them crucial support.

This initiative will not only raise awareness about palliative care but also facilitate connections between patients in need of assistance and available resources, including home care equipment.